Second Day in California

Look at the beauty on the West coast!


Today we had another full day of visits with the transplant team. We have been very impressed with the facility of Lucile Packard and the team. Karroll will have more tests run tomorrow and Major will have anesthesia to do a MRA of abdomen looking at the vessels and placement options for a kidney and hopefully a CT of his chest to look for any problems pulmonary wise prior to transplant. I had heard rumor from a friend, yes you Jill, that we would be expected to stay here and plan to stay for 100 days post transplant. It is a little scary to think we will have to arrange our lives to have one of us here with Major for 3 months at least and then arrange for care of the girls during that time too. I know it will all work out and I believe God will show me the way. I am extremely excited about the research going on here with pediatric transplant patients. I like the possibility that Major may qualify for a steroid-free or low dose steroid medication regimen post transplant. This option could really benefit him from a growth potential and development perspective. The transplant surgeon was so good with Major and assured us that he is the only one who will do Major's surgery from opening his body to close(this is a teaching hospital so there are many residents and students here). I will try to post the picture of the surgeon with Major. Dr. Concepcion insisted on taking a picture with Major. Of course, everyone has been drawn to Major with those sweet blue glasses and the amazing "scooting show." Another big day tomorrow and then a late flight home as long as AA doesn't cancel the flight between now and then.